I was wide awake at 4:00AM on Friday.
The nurse wrapped my port and IV connector in Saran Wrap and let me take a shower, so I was shiny and sweet smelling when I showed up at Starbucks when it opened at 6:00AM. I got a decaf latte, because with the Decadron I definitely need no caffeine.
I don't really remember what else I did that morning! I think that I went to sleep from about 8:00 to 10:30, and then Julie came to visit me from 11:00 to about 12:30. We had a great visit, and I remember laughing a lot but no idea at what. I remember talking about Harries Teeter (our grocery store).
I think that I read a million email messages from the leimyosarcoma listserv that I finally got on. I am just lurking for now; not ready to introduce myself or post. The first message I read a couple weeks ago, some guy was saying that the only way to deal with leiomyosarcoma was surgery, and that upset me, so I didn't do anything but let the email messages pile up for awhile till I got over that. I'd like surgery, but once it is in multiple systems, no one wants to do surgery.
Anyway, the email messages I read on Friday were full of people getting chemo and useful and heartwarming. But I am still lurking.
Alice, Jose, and Dan came to visit from 5:00 to 5:45 and AGAIN I laughed a lot. Alice brought me a cute balloon with a doggy face and Thinking Of You on it.
I have no idea what I did after they left. I know that I was fast alseep by 8:00PM.
I know at some point on Friday I arranged with Doane to come pick us up at the hospital on Saturday at 5:30PM, becaused we were sure I would be getting out that early. I was so happy that I would be able to go home on Saturday, instead of having to wait till Sunday morning.
I think I am lucky that Anya caught a cold and could not visit me because having two sets of visitors on Friday was exhausting enough. Three sets of visitors (no matter how charming) would have been too much.
1 comment:
Karen--I am so glad you did not miss me. :) And, yeah for the good birthday...I was thinking about you all weekend!
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