I just got email from another person with leiomyosarcoma who said that she was told the same thing, that if the metastacized tumors are in multiple systems then no surgery for you. But she said, no surgery did not mean no radiation and no RFA...
So maybe there is more out there for me beyond chemo.
Lou and I just looked at the list of "top sarcoma centers" in the US. If we go, he wants to turn it into a vacation. He is so funny. He always wants to have a good time. Imagine that.
Here is the list:
Cleveland Clinic Sarcoma
Dana Farber Cancer Center, Sarcoma page
Huntsman Cancer Institute
Mass General Hospital Cancer Center
MD Anderson Sarcoma Center
Moffitt Cancer Center Sarcoma Program
Memorial Sloan-Kettering Cancer Center, Sarcoma page
University of Michigan Cancer Center, Sarcoma Clinic
Jonsson Comprehensive Cancer Center (Los Angeles)
This is not a comprehensive list. It is just someone's opinion of "major" or "top" sarcoma centers.