Sunday 8-30-09: Stayed up late, had a lot of fun at the party! Thanks so much to Jane, Darlene, and Meredyth for doing all the hostess work and cleanup during the party for me! I feel great today. It is 2PM and I am still in my pjs. This morning Lou and I watched For a Few Dollars More with Clint Eastwood and Lee Van Cleef. My parents sent me totally cute Virgin Mary earrings (from http://www.signals.com/) which I plan to wear till it is time to get loaded into the machine for the scan on Thursday.
Saturday 8-29-09: Platelets must still be low because I blew my nose pink. Not going to blow my nose again today if I can help it! Pink is my favorite color (but not in my Kleenex). Small party tonight. Going to take a nap now so I have energy later. Since it has been so long since I had a migraine, I am thinking it is time to delete the count (below). No migraines for the Last TWELVE days!
Thursday 8-27-09: AIR CHEMO DAY My platelets must be low because when I blew my nose this morning, I saw blood. Yuck. Felt fatigued but not confused yesterday, so that is an improvement. No Migraines For the Last TEN Days!
Wednesday 8-26-09: Feel good this morning, but decided to work from home today in case I get all exhausted and confused again. Probably not fair to my coworkers for them to have to deal with me and tell me to GO HOME! Took Advil for the burning on the bottoms of my feet. Mouth is a little dry. Eye drops are such a relief! No Migraines For the Last NINE Days!
Tuesday 8-25-09 Evening: Bad Day! I was fine for a couple of hours this morning, and then I could not think or write. Total chemo brain. I stayed long enough at work to make some urgent changes to a document, to make sure some people had the info that they needed, to bail out of all my meetings, and to come home at lunchtime to GO TO SLEEP. Plus, the bottoms of my feet are on fire. No Migraines For the Last EIGHT Days!
Tuesday 8-25-09: Alarm went off at 5:30AM so I could ride the vanpool today -- but I forgot I have a Healing Touch appointment after work with Amelia. So no vanpool. My right foot is killing me right now. Yesterday I struggled with an inability to think after 3:00PM. No Migraines For the Last EIGHT Days!
Monday 8-24-09: Power napped in complete exhaustion on both Saturday and Sunday afternoon, but then was fine all evening; maybe that is my new pattern for the Super Chemo Weekend. Feel good this morning, maybe a little tired and my feet are burning but gosh I wouldn't trade these side effects for some other ones I have heard about! ;^) I have a busy week at work which looming deadlines. I like the rush! No doubt, I am a sick woman. No Migraines For the Last SEVEN Days!
Sunday 8-23-09: Woke up power burping again at 4:00AM! Took Prilosec with a whole can of ginger ale, and it stopped. Otherwise feel good. Spent an hour on the Barnes and Noble website searching for a new book I heard about on the radio but did not catch the author or title... Found it! Jonathan Rabb's Shadow and Light. Also bought Richard Holmes's The Age of Wonder: How the Romantic Generation Discovered the Beauty and Terror of Science to improve my mind ;^) No Migraines For the Last SIX Days!
Saturday 8-22-09: Yesterday was crazy good and I never got to blog! Woke up today feeling very good, finally no headache. Today we are taking advantage of my Decadron energy and putting fresh water in the hot tub. My job is to clean the interior surface between the old water and new water. Lou's job is luckily to perform every other task!
Thursday 8-20-09 Evening: The Super Chemo went really well today. Got a bunch of new info I'll probably post tomorrow (or maybe in the middle of the night tonight ;^) You are all too kind to me, reading this blog and leaving such wonderful messages! It brings me so much surprise and joy. Thanks so much! No Migraines For the Last Four Days!
Thursday 8-20-09 Morning: Super Chemo Today! Let's kill some cancer cells today. No Migraines For the Last Four Days!
Wednesday 8-19-09: Talkative Decadron day, so watch out! I had decaf at breakfast and will avoid caffeine for the next three days. Feeling good except I woke up with a headache that a cup of decaf just cannot dispel. Yesterday I got a Get Well Soon card from everyone in my vanpool! Awesome! Super Chemo Tomorrow. No Migraines For the Last THREE Days!
Tuesday 8-18-09: Yesterday was not good. I had a mild headache and felt sad. (Underneath it all, I was worrying about the upcoming scan.) I held it together all day, then burst into tears when I got home. Lou knows just how long to let me cry and then cheer me up again. I guess I just needed a good cry because today I feel emotionally solidly back on my feet again. No Migraines For the Last TWO Days!
Sunday 8-16-09: I felt wonderful till 3:19PM when I started seeing sparkly lights: MIGRAINE! Darn! Took a Treximet, went to bed and slept for 2 hours. No Migraines For the Last ZERO Days!
Saturday 8-15-09: Happy Anniversary to Lou and Karen! Seventeen fabulous years, every year better than the last. I felt wonderful all day yesterday and woke up feeling mighty fine today as well. No Migraines For the Last EIGHT Days!
Friday 8-14-09: Slept great because the Ambien trumped the Decadron. There are three nights in each 18-day cycle where I take the Ambien or stay up all night. That's not too bad. My scalp is so vastly improved, I'll be a redhead today! No Migraines For the Last SEVEN Days!
Thursday 8-13-09: Good Chemo Day! Plus, the antibiotics have already made a big difference clearing up the rash on my scalp. No Migraines For the Last SIX Days!
Wednesday 8-12-09: I have been sleeping through the night for the last couple of nights. It is awesome! I feel great.
Yikes forgot to copy a few days in here! (Progress not perfection!)
Sunday 8-9-09: Slept great, lazy Sunday planned.
Saturday 8-8-09: WIDE AWAKE at 3:50AM probably because I slept all afternoon on Friday with the migraine. Got a lot of ironing done in the wee hours. Lou went to the gun show. I'm going to Barnes and Noble. My face and scalp are very irritated!
Friday 8-6-09 afternoon: Rats! Migraine AGAIN. Twice in one week.
Friday 8-6-09 morning: TGIF! Slept LATE -- till 7:15AM! Really felt great yesterday and put in a full day and didn't get to bed till 10PM and read for awhile. This morning I feel good except my mouth is dry and the bottoms of my feet are numb -- wish my mouth was numb and my feet were dry.
Thursday 8-6-09: Vacation Day! Air Chemo Day! I planned to sleep as late as I wanted, but I woke up pretty chipper at 6:45 this morning. Some foods taste funny right now. I am planning to go out to lunch for sushi with my friend Nancy. So far, sushi has always tasted good.
Wednesday 8-5-09 evening: Had a great day but hit the wall at 4:15 and decided to come home. Lots of Nutrisystem food got delivered yesterday so no idea what I am having for dinner tonight.
Wednesday 8-5-09 morning: Feeling much better than yesterday. So far all I have is a little bone pain. Planning to actually go into the office today!
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I talk to my mother, Patsy, practically every morning as I drive to work, or once I get to work if I am in the vanpool that day. This morning, Patsy said that my Aunt Frankie was looking for a way to read through all the old Quick Updates. Till now, there has been no way to do that. Every time I make a new update, I just delete the last one.
The Quick Updates are so trivial, there didn't seem to be a reason to keep them. Who really cares if I slept eight hours last night or just two? If I am hoping for sushi? (When am I not hoping for sushi?!)
But if Frankie and Patsy want something, then by golly, I have to give it a shot. So here is a new blog topic where I will try to remember to dump all the Quick Updates instead of deleting them. We'll call it an experiment and see if:
1) anyone likes it
2) I can maintain it without too much trouble
2 comments:
thank you so much for your efforts on our behalf!!
Patsy and Frankie
I like it! I think of you soooo often!
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